When Endometriosis Hits Different: Let’s Talk About Thoracic Endometriosis

When Endometriosis Hits Different: Let’s Talk About Thoracic Endometriosis

Endometriosis in Your Lungs?! Yep — It’s Real (and You're Not Alone)

Endometriosis has a reputation for messing with periods and pelvic pain — but did you know it can travel all the way to your chest and lungs? It’s called Thoracic Endometriosis Syndrome (TES), and even though it’s rare, it’s a major disruptor for anyone who experiences it.

It’s time to shine a spotlight on this sneaky form of endo — because awareness = power. And at KUSHIE

💔 What Exactly Is Thoracic Endometriosis?

Imagine endometriosis lesions — the same ones that grow in your pelvis — setting up camp in your chest cavity, usually around your lungs or diaphragm. These rogue tissues act just like they would in your uterus: swelling, shedding, and triggering inflammation with every cycle. Only this time, they’re cramping your breathing, not just your uterus.

It’s like having period cramps... in your chest. 🤠

Sources:

  • Alifrangis, C., Nagra, S., & Bekker, M. (2020). Thoracic Endometriosis: Current Diagnostic and Management Strategies. Journal of Clinical Medicine Research.

  • Nezhat, C., et al. (2019). Thoracic Endometriosis Syndrome: Diagnosis and Management. Clinical Obstetrics and Gynecology.

😤 What Causes It? (Spoiler: We Don’t Have All the Answers)

Researchers are still piecing together the puzzle, but here’s what they suspect:

  • 🛸 Tissue Traffic Jam: Endo cells may hitch a ride from your pelvis to your chest through your lymphatic system.

  • ✂️ Surgical Stowaways: Past surgeries (like C-sections or pelvic surgeries) could accidentally relocate tissue.

  • 🔥 Hormones Gone Rogue: Just like pelvic endo, thoracic lesions respond to hormonal changes — especially around your period.

Sources:

  • Marshall, M., et al. (2019). Theories on the Pathogenesis of Thoracic Endometriosis. Journal of Minimally Invasive Gynecology.

🚨 Symptoms That Deserve to Be Taken Seriously

Thoracic endo doesn’t always show up with flashing lights — but your body will drop some hints. If you experience:

  • Sharp chest pain (especially during your period)

  • ⚠️ Shortness of breath for no obvious reason

  • 🩸 Right shoulder pain that feels random AF

  • Unexplained lung collapse (pneumothorax)

...it’s time to talk to a specialist who understands endometriosis beyond your uterus.

Sources:

  • Nezhat, C., et al. (2019). Thoracic Endometriosis Syndrome: Diagnosis and Management. Clinical Obstetrics and Gynecology.

🛑 How Thoracic Endo Wrecks Your Routine

Chronic chest pain + unpredictable breathing issues = a recipe for frustration, fear, and exhaustion.

  • ✨ Breathing too hard to even walk across the room?

  • ✨ Struggling to sleep comfortably?

  • ✨ Scared your lung might collapse at any moment?

This is NOT "just anxiety" — your symptoms deserve respect. And you deserve solutions that center your whole body.

🔎 Why Diagnosing TES is (Wildly) Hard

The symptoms of thoracic endo mimic a million other conditions — so diagnosis can take years. 🙄 Most people bounce between pulmonologists, gastroenterologists, and even cardiologists before someone considers endo outside the pelvis.

  • ✅ Imaging (CT scans, MRIs) sometimes helps — but lesions are often too small to spot.

  • Laparoscopy or thoracoscopy surgery is the gold standard for a true diagnosis.

If doctors dismiss your pain, don’t be afraid to advocate for a specialist who actually knows endometriosis inside AND out.

Sources:

  • Alifrangis, C., Nagra, S., & Bekker, M. (2020). Thoracic Endometriosis: Current Diagnostic and Management Strategies. Journal of Clinical Medicine Research.

💡 Managing Thoracic Endo: No One-Size-Fits-All, But You’ve Got Options

Managing thoracic endometriosis isn’t a checklist — it’s a whole lifestyle shift. Here’s what can help:

🔥 Pain Relief That Works for You

⚖️ Physical Therapy for Your Chest + Pelvis

  • Your pelvic floor and diaphragm are BFFs — tension in one can trigger the other.

🥦 Nutrition that Supports Healing

  • Anti-inflammatory foods (think leafy greens, berries, healthy fats) can calm your system.

👨‍⚕️ Find a Specialist Dream Team

  • A thoracic surgeon + an endo-experienced gynecologist = your power duo.

🧠 Therapy & Support Groups

  • Because living with an invisible illness in your chest takes a mental and emotional toll, too.

✂️ When Surgery Becomes Necessary

For severe cases — especially when lung collapse happens — excision surgery or thoracic surgery may be the best bet for relief. Combine it with hormonal management, lifestyle adjustments, and compassionate care for the best outcomes.

🧡 KUSHIE’s Mission: Your Pain is Real — Your Story Matters

At KUSHIE, we know that endo is so much more than “bad cramps.” It’s a whole-body, whole-life experience — and you deserve products, support, and education that actually meet you where you are.

  • ✨ That’s why we created the KUSHIE Menstrual Pain Relief Belt, designed to bring comfort wherever you need it — belly, back, or even those referred pain areas like your shoulder.

  • ✨ And that’s why we’re building a community where menstrual health isn’t taboo — it’s front and center.

📢 Spread the Word — Someone Needs to Hear This

Do you know someone who’s been gaslit about chest pain, shoulder pain, or breathing issues that get worse with their period?

💌 Share this page with them — it could change everything.

For more real talk on menstrual health — from pelvic pain to the most unexpected endo facts — follow @SheKushie on Instagram.

You’re not alone. We see you. We believe you. And we’re fighting with you.

Back to blog

Leave a comment

Please note, comments need to be approved before they are published.